Team
The ataxia.info portal is run collaboratively by volunteers.
Some are people living with ataxia, others are caregivers, and many are compassionate individuals who dedicate part of their time to supporting advocacy efforts for those affected by ataxia and other rare diseases
Márcio Galvão
Engineer (UFRJ)
Researcher and administrator of the ataxia.info portal
Husband of a rare person
Ataxia Support Group Moderator
ABAHE Volunteer
Amália Maranhão
Journalist
Director of ABAHE
Brazilian Association of Hereditary and Acquired Ataxias
Mother of a rare person. Rare disease activist.
Advocacy Consulting
Gilson Ruiz
Designer (UFSC)
Director
WHOIZ STRATEGIC DESIGN
If you're going to do it, do your best.
Husband of a rare person.
ABAHE Volunteer
Daniana Corrêa
Digital influencer
web designer WHOIZ STRATEGIC DESIGN
Rare person (ataxia SCA3)
Ataxia Support Group Moderator
Rare disease activist
ABAHE Volunteer
Thiago Sayão
Systems Analyst
Full stack developer
Rare person (ataxia SCA3)
Ataxia Support Group Moderator
ABAHE Volunteer
Catiana Librelato
Teacher
Rare disease activist
Ataxia awareness advocate
Wife of a rare person.
ABAHE volunteer.
Rodrigo Mansil
Journalist
Digital influencer
Rare disease activist.
Rare person (ataxia SCA3)
Tina the Pug's father.
ABAHE Volunteer
Natache Iamaya
Digital Influencer
Activist and ambassador @curefa_org
Rare person (Friedreich's ataxia)
ABAHE Volunteer
Ilkyaz Tasdemir
Digital Influencer
Camila Mendes
Writer
Rare disease activist.
Rare person (ataxia acquired after cancer treatment)
ABAHE volunteer.
Renata Nunes
Digital Influencer
Passionate about Yoga
Rare disease activist.
Rare person (ataxia SCA3)
Moderator.
ABAHE Volunteer
Andrei Noronha
Digital Influencer
Rare disease activist
Rare person (ataxia SCA3)
Moderator of the Ataxia Support Group.
ABAHE Volunteer
Veronica Arantes
Model
Rare disease activist.
Rare person (ataxia acquired after cancer treatment)
ABAHE volunteer.
Marla Maia
Rare disease mom
Rare disease activist.
Rare person (ataxia acquired after cancer treatment)
ABAHE volunteer.
DISCLAIMER
This website contains material on ataxias shared by the author for purely educational purposes, with no commercial intent. There are no conflicts of interest to declare. Some content is freely translated from reliable sources, which are always cited with proper credit. Product names mentioned are trademarks of their respective companies. The mention of products or services does not constitute an endorsement or recommendation.
The author strives to keep the portal updated, but given the dynamic nature of the internet, some links may stop working (if you find any, please notify us). The content is shared in good faith, free of charge, and the author does not assume responsibility for its use. All medications must be prescribed by physicians, and any information about medications posted here is for informational purposes only and does not constitute a prescription or recommendation. It is advisable that you discuss and validate the information shared here with your neurologist.
The images used are free for use, generated with the support of Artificial Intelligence, or licensed. Translation into English was performed by Artificial Intelligence. If you find any copyrighted image or would like to contribute with reference suggestions, feedback, or error corrections, please get in touch.
This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License .