Follow the rare ones!
Some profiles of influencers with ataxia on Instagram.
If you have ataxia and would like to have your Instagram profile featured on this page, please contact us .
Follow the ataxia.info profile on Instagram
Instagram profiles shared with the authors' permission. All videos are narrated in Brazilian Portuguese
Rodrigo Mansil
🧠ataxiadiary💪🏼
🧠 Cerebellar ataxia Machado Joseph SCA 3.
🔆 I show my routine to motivate other people.
About my diagnosis:
⬇️
www.bbc.com/portuguese/geral-63420869
SCA3 (ATXN3 gene)
Renata Nunes
Living with Ataxia SCA3
- One day at a time.
In love with Yoga ❤️
Ataxia does NOT define me 💪
SCA3 (ATXN3 gene)
Dani Correa
I was born in Rio Grande do Sul, grew up in Manaus as a pre-adolescent. I was a teenager and mother in São Paulo, a mother for the second time in Florianópolis, and now I live in Poa (RS). I have an ataxic soul, but that doesn't define me.
SCA3 (ATXN3 gene)
Natache Iamaya
Learning and teaching how to live with a rare disease called Friedreich's Ataxia
NO LESS...DIFFERENT
Ambassador @curefa_org
Friedreich's ataxia (FNX gene)
Helena da Graça
Friedreich's Ataxia
I show you how to find happiness even in difficult times.✨
Diagnosed with a rare disease.👩🏽🦽
Friedreich's ataxia (FNX gene)
Giovanna Boscolo
Friedreich's Ataxia ♿️
Biomedical 🧬
Paralympic Athlete 💪🏻✨
📩: assessoria.giboscolo@gmail.com
Publish: marcelo.borges@terra.com.br
www.uol.com.br/esporte/ultimas-noticias/2024/03/10/ela-foi-chiquitita-e-estagiou-no-comite-paralimpico-agora-sonha-com-paris.htm + 3
Friedreich's ataxia (FNX gene)
Juliana Moura
ju moura
Nutrition student
Friedreich's ataxia (FNX gene)
İlkyaz Tasdemir
Life changed, so did I.
Healing after bipolar & neurological collapse.
Healing tips, exercises and more ✨
#ataxiasurvivor 🧠
"I just couldn't make sense of anything. I had two projects to deliver, a house that needed cleaning, two cats and a partner to keep happy, and a stomach that wouldn't stop growing.
“Of course I have to think of everything!”
Metal music was blasting in my ears as I dumped the dirty cat litter into the trash, expressionless. When I walked back into the house, something felt… off. But I couldn't tell what it was.
Still irritated, thinking of all the tasks I had to do, I looked for something to eat. But wait, I was on a diet. So, coffee and some nuts it was.
"Damn this life! I'm juggling everything, and on top of that, I'm starring myself for a better body. I try to do two jobs at once, and what do I get in return? More work… Something's gotta change."
…And something changed.
Read my story👇
Orange Healing Blog
İlkyaz is from Türkiye, and acquired ataxia from Lithium poisoning.
Blog Profile and Content IN ENGLISH
Felipe Pires
Health/beauty
𝘛𝘩𝘦𝘺 𝘴𝘢𝘪𝘥 𝘐'𝘥 𝘯𝘦𝘷𝘦𝘳 𝘵𝘳𝘢𝘪𝘯 𝘢𝘨𝘢𝘪𝘯.
𝘐 𝘴𝘢𝘪𝘥 𝘐'𝘭𝘭 𝘱𝘳𝘰𝘷𝘦 𝘵𝘩𝘦𝘮 𝘢𝘭𝘭 𝘸𝘳𝘰𝘯𝘨.
Fighting Ataxia since 14 years.
Official @fujisportsus athlete.
#brownbelt
SCA2 (ATXN2 gene)
Letícia Mota
📚 Nutrição - UFS
🧬 Ataxia de Friedreich
Friedreich's ataxia (FNX gene)
Audrey Colalilo
∴ ᴀᴜᴅʀᴇʏ ᴄᴏʟᴀʟɪʟᴏ
∴ 1994 | Aries | advertising professional | rare
SCA1 (ATXN1 gene)
Andrei Noronha
Personal blog
🇺🇸 | BSB 1992
Christian, my hope is a carpenter from Nazareth.
Diagnosed with ataxia in 2018.
Get to know my story. 👇
youtube.com/@andreinoronha2
SCA3 (ATXN3 gene)
Bruna Proença
Girl who discovered a rare disease, living with Ataxia with oculomotor apraxia type 2, AoA2.
Always looking to evolve, being strong and courageous ✨
www.ataxia.info .
AOA2 (SETX gene)
Erika Hassegawa
Spinocerebellar Ataxia SCA6
Inspire ✨ Be Light
Quality of life.
Movement is healing.
Spiritual, physical and mental health.
SCA6 (CACNA1A gene)
Spinocerebellar Ataxia Type 6
Carlos Leão
- Brasília, DF
- Lawyer ⚖️
- Life enthusiast 🫶🏽
- SCA‑3 ataxia 💪🏽"
SCA3 (ATXN3 gene)
Elder Peixoto
📍Fortaleza, Brazil
Civil Engineer
Public Sector Professional
SCA3 (ATXN3 gene)
Claudia Nunes
Move your life!
📌Dance therapy.
📌Psychodrama 📌Art Therapy
inclusion
Hortencio de Moraes Street 1530, Uberlândia
linktr.ee/movimenteatelier
SCA3 (ATXN3 gene)
Jacqueline Garrido
⚡MITO is in a HURRY
🆘️MITO: THERE IS NO TIME⏳
Mitochondrial (Polg gene)
Ana
ANA has a rare disease SCAR 9 (early onset coenzyme Q10 deficiency type 4), cerebellar atrophy, ADHD, GAD, GH deficiency
Monitored: @personal_gislaynesoares
SCAR9 (ADCK3 gene)
Renildes Santos Xisto
@renildesfilhocomataxia
Mother of Thiago Xisto, with ataxia still without a determined cause.
Taina Rodrigues
🧠 Spinocerebellar Ataxia SCA 25 🌻
Together we are stronger! Just because it's rare doesn't mean it doesn't exist!
Admin profile @mihrteixeira
SCA25 (PNPT1 gene)
Ana Maria
Ataxia Diary, learn more about this rare disease. Digital content creator dedicated to information about ataxia. Welcome.
