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ataxia.info blog

News related to research, medications, events, laws, and other topics of interest to people with ataxia.

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Márcio Galvão

Márcio Galvão

Event at the National Academy of Medicine: Meeting with ITEC (Parliamentary Front on Rare Diseases)

Event at the National Academy of Medicine: Meeting with ITEC (Parliamentary Front on Rare Diseases) in August 2025

Márcio

Aug 241 min read

Public Hearing on Friedreich's ataxia on August 19, 2025.

Public Hearing on Friedreich's ataxia on August 19, 2025.

Public Hearing in the Chamber on Friedreich's Ataxia

Public Hearing on Friedreich's ataxia on August 19, 2025.

Márcio

Aug 201 min read

AI-generated image of a girl with Friedreich's ataxia painting a picture.

AI-generated image of a girl with Friedreich's ataxia painting a picture.

Biogen Initiates Phase 3 Study of Omaveloxolone in Children with Friedreich's Ataxia

Biogen initiates Phase 3 study with Omaveloxolone in children with Friedreich's ataxia.

Márcio

Jul 211 min read

Meeting of the State Committee for the Defense of Human Rights of People with Rare Diseases

Meeting of the State Committee for the Defense of Human Rights of People with Rare Diseases

68th Meeting of the State Committee for the Defense of the Human Rights of People with Rare Diseases

Meeting of the State Committee for the Defense of Human Rights of People with Rare Diseases

Márcio

May 221 min read

@ataxia_info and @renata_ataxia present at the 3rd Congress on Rare Diseases

@ataxia_info and @renata_ataxia present at the 3rd Congress on Rare Diseases

@ataxia_info present at the III Congress of Rare Diseases

@ataxia_info and @renata_ataxia present at the 3rd Congress on Rare Diseases

Márcio

May 211 min read

ANVISA approves Skyclarys for Friedreich's ataxia

ANVISA approves Skyclarys for Friedreich's ataxia

ANVISA approves Skyclarys for the treatment of Friedreich's ataxia

ANVISA approves Skyclarys for Friedreich's ataxia

Márcio

Apr 121 min read

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