top of page

Ataxia Support Groups

Some ataxia support groups are listed on this page. There are many others. Use Google to search for groups that interest you in your country/preferred language.

Person with disability in a wheelchair or using walkers against a background with social media logos.

BRAZIL

ABAHE Support Group on WhatsApp (for members)

ABAHE maintains a WhatsApp support group for ataxia patients and caregivers. To join the group, you must be registered with Abahe  (Brazilian patients only!). 

LOGO NOVO ABAHE ago 2025.jpg

USA

NAF (National Ataxia Foundation) Ataxia Support Groups
NAF maintains several ataxia support groups throughout the United States.

Image of the NAF (National Ataxia Foundation) Facebook support group page

In particular, it's recommended to request access to the main NAF Support Group on Facebook , which has about 12,000 members (the largest in the world) and has a wealth of important information for ataxia sufferers, as well as family members and caregivers. The group's language is English, as it was created in the United States.

UK

Ataxia.UK Support Groups

Image from the ataxia.uk UK support group

In the UK, an important source of information and resources for ataxics is ataxia.org.uk. This organization also maintains several virtual and local (in-person) support groups,

Content translated  with AI support. Please read the Disclaimer .

bottom of page