Amália Maranhão in a meeting with Biogen
- Márcio
- Jun 25, 2024
- 1 min read
Biogen CEO Chris Viehbacher, the company's intercontinental director, Fraser Hall, and the Biogen Brazil team met today with Abahe representative Amália Maranhão to hear the story of building the Friedreich's Ataxia community in Brazil and understand the journey of "Fredericos" and their families in the search for a diagnosis and a better quality of life.
The meeting included testimony from Vicente Salgado Pires, a patient with a master's degree in Genetics and Molecular Biology and a PhD in Biochemistry, who has lived with Friedreich's Ataxia since he was 15. Also present were a patient and a representative of another rare disease.
The conversation was fruitful and a further step in building the partnership with Abahe to raise awareness of Friedreich's Ataxia in Brazil.
*If you have ataxia and want to help speed up research, register at abahe.org.br
Text reproduced from a post on the ataxias do Brasil (Abahe) Facebook profile (Amália Maranhão)
[Post published on 06/25/2024 by Márcio Galvão]
