Caregivers
Caregivers—whether family members or professionals—play a key role in supporting patients with ataxia and other rare diseases that can be neurodegenerative.
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Neurologists with experience in ataxia
Last updated on 01/19/2024
DISCLAIMER: The following information is based on patient recommendations. The ataxia.info portal has no commercial relationships with any healthcare professional and does not take responsibility for possible issues in medical care. It is always advisable to confirm whether the doctor provides care for ataxias. Some limit this care to the public hospital where they work, while others only offer private consultations. Consultation fees vary widely. Some doctors accept health insurance, while others do not.
Dr. Helio Van der Linden
Neurologist
Telephone: 62 98331.6065
Neurophysiologist at USP. Specialties: Autism, Rare Genetic Disease, Epilepsy; Director of SBNI SONG
Dr. João Paulo Toiansk
Neurologist
T-50 Street, 766 - St. Bueno, Goiânia - GO
Telephone: 62 3087-3114
Physiotherapists with experience in ataxia
Last updated on 03/31/2023
Dr. Lorena
Physiotherapist
+55 62 99225-9935
Public service provided by the SUS through CRER in Goiânia
Hospitals and Rehabilitation Centers
Institution: Dr. Henrique Santillo State Center for Rehabilitation and Readaptation – CRER
(Information shared by Rodrigo Mansil - Instagram @rodri_goataxia)
Address: Av. Councilor José Monteiro, 1655, St. Negrão de Lima. Goiânia - Goiás
ZIP Code: 74653-230
(62) 32323000 and (62) 32323232
Instructions: The Dr. Henrique Santillo State Rehabilitation and Readaptation Center (CRER) is the country's first rehabilitation hospital, a unit of the Goiás State Health Department, and is served by the Unified Health System (SUS). CRER offers wheelchairs, shower chairs, motorized chairs, orthoses, and prosthetics . Follow-up by a neurologist, physiatrist, dental treatment, equine therapy, physical therapy, occupational therapy, psychologist, speech therapy, music therapy, art therapy, and hydrotherapy are all available through the SUS. CRER is the largest neurological referral center in the Central-West region. CRER also performs genetic testing for diagnosis. The patient may be from another city. In this case, your city's Health Department likely provides transportation and a group home in Goiânia.
To access CRER:
1- Look for the health center in your city and make an appointment with a physiatrist or neurologist and ask for a referral to CRER.
2- If you already have a genetic test and report, it's faster. If not, get the referral anyway.
3- Stay calm. The waiting list is long, and it can take several months to be called. But once admitted, the patient undergoes hospitalization until surgery , covering a wide range of neurological services.
Institution: CER (Integrated Rehabilitation Center)
There is a national network of Integrated Rehabilitation Centers (CER) served by the Unified Health System (SUS), with units in several municipalities in each state. For example, there are several CER units in Goiás .
https://www.facebook.com/CER32756362/
Find out which other municipalities in Goiás have CER units.