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ataxia.info blog
News related to research, medications, events, laws, and other topics of interest to people with ataxia.
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Cure Rare Disease receives $5.69 million CIRM grant for ASO gene therapy research for SCA3 ataxia
Cure Rare Disease receives $5.69 million in funding from CIRM for research on ASO gene therapy for SCA3 ataxia.
Márcio
Feb 82 min read
About Troriluzole
Information about Troriluzole
Márcio
Dec 14, 20245 min read
ABAHE at the D-20 Conference in Rio de Janeiro (Nov 2024)
Márcio Galvão (@ataxia_info), volunteer at ABAHE (Brazilian Association of Hereditary and Acquired Ataxias), attended D-20 (Disability 20), one of the segments of the G-20 Social in Rio de Janeiro, Brazil.
Márcio
Nov 15, 20241 min read
Public hearing in the Senate on the incorporation of medicines for rare diseases by the SUS (Nov 2024)
Marla Maia, Director of Abahe, present at a public hearing in the Senate on the incorporation of medicines for rare diseases by the Brazilian Unified Health System (SUS).
Márcio
Nov 15, 20241 min read
Hybrid event on ataxias at the Nerve Club
Hybrid event (in-person and Zoom) at Clube do Nervo on ataxias.
Márcio
Nov 4, 20241 min read
We Are All Rare
On October 10th, the "We Are All Rare" Symposium was held, organized by Dr. Osvaldo Nascimento and Dr. Omar Lupi at the headquarters of the National Academy of Medicine here in Rio de Janeiro.
Márcio
Oct 11, 20241 min read
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