Vídeos NAF

Referências para vídeos relacionados com ataxias (entrevistas com especialistas, orientações, pesquisas ensaios clínicos em andamento etc.) publicados pela NAF (National Ataxia Foundation).

Alguns vídeos são em inglês, mas em muitos casos é possível habilitar legendas com tradução automática para o português. Todos os vídeos estão disponíveis publicamente no canal do YouTube da NAF, que detêm os direitos autorais.

Link para o canal da NAF no YouTube

Ataxia de Friedreich

Research & Treatment Development for Friedreich's Ataxia - March 17th, 2023

All About Friedreich's Ataxia - Dr. David Lynch on March 6th, 2023

Ataxia SCA1

Dr. Marija Cvetanovic on "Cerebellar vulnerability in SCA1" | NAF Science Showcase - Nov 7, 2023

Research and Treatment Development for SCA1 - Dr. James Orengo on May 18, 2023

All About SCA1 - Dr. Sharan Srinivasan on May 4th, 2023

Ataxia SCA2

Research and Treatment Development for SCA2 - Dr. Sokol Todi - 26 de Julho, 2023

All About SCA2 - Dr. Giulia Coarelli on July 11th, 2023

Ataxia SCA3

Research & Treatment for SCA3/MJD - Dr. Hayley McLoughlin on February 16th, 2023

All About SCA3/MJD - Dr. Jennifer Faber on February 13th, 2022

PrepRARE Webinar: STRIDES Study for SCA3

Ataxia SCA5

Research and Treatment Development for SCA5 - Dr. Adam Avery - March 19th, 2024.

All About SCA5 - Dr. Theresa Zesiewicz - March 8th, 2024

Ataxia SCA6

Research and Treatment Development for SCA6 - Dr. Allana Watt on April 26, 2023

All About SCA6 - Apr 11, 2023

Ataxia SCA8

Research and Treatment Development for SCA8 - Dr. Hannah Shorrock - 18 de Agosto 2023

All About SCA8 - Dr. Odinachi Oguh - 16 de Agosto 2023

Ataxia SCA27B

Research and Treatment Development for SCA27B - Dr. Bernard Brais and Dr. David Pellerin on December 12th, 2023

All About SCA27B - Dr. Bernard Brais and Dr. David Pellerin - November 8th, 2023

Ataxias Episódicas

Research and Treatment Development for Episodic Ataxia - Dr. Lorenzi Cingolani - January 25th, 2024

All About Episodic Ataxia - Dr. Anhar Hassan -January 12th, 2024

Ataxias Imunomediadas

Research and Treatment Development for Immune-Mediated Ataxia - Dr. Jérôme Honnorat on 27 de Junho, 2023

All About Immune-Mediated Ataxia - Dr. Natalie Witek - June 6th, 2023.

CANVAS (Cerebellar Ataxia, Neuropathy and Vestibular Areflexia Syndrome)

Research and Treatment Development for CANVAS - Dr. Andrea Cortese - February 15th, 2024

All About CANVAS - Dr. David Szmulewicz -February 6th, 2024

MSA-C (Cerebellar type Multiple System Atrophy)

Research and Treatment Development for MSA-C - Dr. Shoji Tsuji - October 17th, 2023

All About MSA-C - Dr. Elizabeth Coon - October 6th, 2023

Vídeos diversos NAF sobre ataxias

Visual Symptoms and Treatments for Ataxia - November 14th, 2023

What are Natural History Studies? | PrepRARE Video - 31 de Julho 2023

Neuropsychology of Ataxia with Dr. Aaron Ritter - May 1, 2023

Keynote Progress Toward Treatments for Ataxia - May 1, 2023

All About Unknown Ataxia Without Family History - Feb 2023

Psychological Aspects of Ataxia